Stories from a home for terminally ill children | Kathy Hull

Reading Time:  1 Minute

To honor and celebrate young lives cut short, founded the first freestanding facility in the , the George Mark Children’s House. Its mission: to give and their families a peaceful place to say goodbye. She shares stories brimming with wisdom, joy, imagination and heartbreaking loss.

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37 Replies to “Stories from a home for terminally ill children | Kathy Hull”

  1. That was incredibly moving. I live in the United Kingdom and a cousin of mine was in a hospice for the final 8 months of his life and I am still, even to this day (3 years on), convinced he lived longer than predicted just because of the love he was given in there. I support you 100% in your effort to create more establishments in the US and wish you nothing but good luck.

  2. To whoever thinks that the US healthcare system is good – these institutions are CHARITIES. That means they operate OUTSIDE healthcare system on donations of few people. Why isn't it part of the system? No profit! Because, you know, everything in the US has to be for profit, from healthcare and education to prisons. Sick people? Profit! No profit? Let them die! People wanting to go to college and improve their lives and the lives of people around them? Put them in debt! Profit! Misguided people, who made mistakes? Profit!!! Not enough profit? Put some more in jails for no reason, like marijuana possession! Or, better, by the color of their skin. Correct them? What are we, charity? Mha! Ha-ha! Make the profit, crush their lives!!! Your system is absolutely and utterly sick. But sure, socialists are the evil bunch.

  3. There is still lack of awareness on palliative care in the world, much less specifically for young people. Most people ponder about meaning of life but rarely the meaning of death. If we can be more open to discuss such topics, there can be less shock and denial when we handle this part of our life journey together.

    Hospice care may also be viewed as a privileged form of service for those that can afford. I wonder if poor dying patients also get to enjoy a dignified journey to their end of life.

  4. Before death exists, life must exist. And for life to exist, people have to make a person. An animal reproduces, but an intelligent being makes a person. I have not yet understood how one could dare to make a person. I have not yet understood how one could dare to manufacture a person without mastering its manufacture. By what right does an intelligent being make another person? I do not understand that people think they are intelligent and that they make a person! It's totally paradoxical.

  5. If only all the money that goes to slaughtering innocent children in the middle east went to science instead, we wouldn't have to experience all of this today. Let's not forget to blame the right people.

  6. This is the best TED talk I've seen yet. Thank you, Kathy.

    I've had the fortune to spend a little bit of time with children with life threatening illnesses and their families through Make A Wish foundation, but not in a hospice environment. The families surrounding these children during these times are going through a combination of emotions that is like no other. Its wonderful that there are at least two locations where children and their families can go that is peaceful. I will look into ways of supporting some of the other efforts in progress so that the number can grow.